Ammar AL-CHALABI
Professor Of Neurology And Complex Disease Genetics
Ammar Al-Chalabi is Professor of Neurology and Complex Disease Genetics at King’s College London where he is Director of the King’s Motor Neuron Disease Care and Research Centre. His research focuses on causes, modifiers and potential treatments for ALS. He is co-Director of the UK MND Research Institute, Programme Chair of the International Symposium on ALS/MND, and is a National Institute for Health Research Senior Investigator. His work has been recognized by multiple honours, including the Forbes Norris Award from the International Alliance of ALS/MND Associations, the Healey Center International Prize for Innovation in ALS, the Sheila Essey Award from the American Academy of Neurology, a Gold National Clinical Excellence Award and Fellowship of the UK Academy of Medical Sciences. He is a Visiting Fellow at the Perron Institute for Neurological and Translational Science, and Lisa S Krivickas Visiting Professor at Massachusetts General Hospital.
Angela GENGE
Professor, Department of Neurology and Neurosurgery, McGill University
Dr. Angela Genge is the Director of the Amyotrophic Lateral Sclerosis (ALS) Clinic at The Neuro, Montreal Neurological Institute-Hospital, and the Executive Director of the ALS Center of Excellence. She earned her MD at Memorial University of Newfoundland, completed her residencies at McGill University, and completed a Fellowship in Neuromuscular Diseases at The Neuro. She obtained both Canadian and American certifications in internal medicine and neurology. During her tenure as Executive Director of the Clinical Research Unit (CRU) at The Neuro from 2004 to 2023, she established it as one of the largest neurological clinical research centers in Canada, home to a first-of-its-kind Phase 1 Unit dedicated to neurological diseases. Recognized as an international leader in clinical research and an expert in rare neurological conditions, Dr. Genge has led trials in ALS, dementias, myopathies, neuropathies, myasthenia gravis, and pain. Dr. Genge has extensive experience in trial design and drug development, from early-phase studies to real-world evidence programs, as well as regulatory and medical affairs. She has served as a consultant for biotech companies specializing in rare diseases and has been a member of numerous advisory boards, and data and safety monitoring boards. Her work and dedication have been acknowledged with multiple awards, including the 2023 Wings Over Wall Street Award, the 2018 Forbes Norris Award from the International Alliance for ALS/MND Associations, and the Governor General’s Diamond Jubilee Award. Dr. Genge currently leads ACCESS ALS and serves on the executive committees for CAPTURE ALS, TRICALS, Precision ALS, the ALS Network, and the WFN MND Study Group.
Dongsheng FAN
Gen SOBUE
President at Aichi Medical University
In 1975, graduated from Nagoya University, School of Medicine. From 1981, worked as a lecturer and an associate professor at Aichi Medical University. In the meanwhile, 1982 to 1985, worked as an assistant professor at the University of Pennsylvania, USA. In 1995, appointed as a professor of neurology at Nagoya University Graduate School of Medicine. From 2009 to 2012, served as the dean of Nagoya University Graduate School of Medicine. From 2015, worked as a director of Brain and Mind Research Center at Nagoya University. From 2019, serve as a president at Aichi Medical University.
Jung-Joon SUNG
Neurologist
Jung-Joon Sung received his MD, PhD from Seoul National University College of Medicine, Seoul Korea. He completed residency and neuromuscular fellowship in Neurology, Seoul National University Hospital. He has been a full professor and director of neuromuscular division at Seoul National University Hospital since 2014. He is focusing on translational medicine for ALS and recently, dedicated on the development of cell and gene therapy to cure ALS. He has authored or co-authored 131 international and 46 national publications. He has applied more than 20 international patents and registered 7 patents. He is leading KALSA since 2018.
Merit CUDKOWICZ
Chief of the Massachusetts General Hospital Neurology Service
Dr. Merit Cudkowicz is the Chief of the Massachusetts General Hospital Neurology Service, Director, Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital and the Julieanne Dorn Professor of Neurology at Harvard Medical School in Boston. Dr. Cudkowicz is one of the founders and former co-directors of the Northeast ALS Consortium (NEALS), a group of over 140 clinical sites in the United States, Canada, Europe and the Middle East dedicated to performing collaborative academic-led clinical trials and research studies in ALS. She is leading the first Platform Trial initiative in ALS and is also the Principal Investigator of the Clinical Coordination Center for the National Institute of Neurological Disorders and Stroke’s Neurology Network of Excellence in Clinical Trials (NeuroNEXT). Dr. Cudkowicz mentors neurologist in careers in experimental therapeutics.
Michelle FARRAR
Child Neurologist
Dr Michelle Farrar is Professor of Paediatric Neurology and Neuroscience at UNSW Medicine and Sydney Children’s Hospital Network (SCHN). Her work focuses on spinal muscular atrophy and neurodegenerative diseasess in children. She is an Australian National Health and Medical Research Council Investigator (Emerging Leader), on the topic of “Improving health outcomes for children with rare neurological diseases with genomic technologies”. She directs the multidisciplinary neuromuscular clinic and clinical research program at SCH. Her work includes clinical care, training of residents and fellows, clinical research and collaborating with scientists in translational research. Dr. Farrar is a principal investigator in spinal muscular atrophy clinical trials, and the clinical lead for the Australian SMA newborn screening pilot programme and clinical guidelines. She is medical director for Muscular Dystrophy NSW and a member of the International Rare Diseases Consortium Therapies Scientific Committee.
Ruben VAN EIJK
Shyuan NGO
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